(NEW YORK) — A Florida teen has been battling an infection suspected to be caused by a rare, brain-eating amoeba for over 50 days, as his family prays for him to wake up, they said.

Caleb Ziegelbauer, 13, was suffering from a severe headache, high fever and hallucinations when his family brought him to Golisano Children’s Hospital of Southwest Florida in Fort Myers on July 9, according to Lee Health, the hospital’s parent company.

After quickly ruling out bacterial meningitis, doctors began treating the teen for primary amebic meningoencephalitis, a disease with similar symptoms that’s caused by Naegleria fowleri, an amoeba that destroys brain tissue. Caleb swam in brackish water days before experiencing his symptoms, further causing doctors to suspect he was infected by the amoeba, the hospital said.

Samples sent to the Centers for Disease Control and Prevention ultimately tested negative for Naegleria fowleri, though Caleb’s doctors continued treating the teen for primary amebic meningoencephalitis due to his symptoms and history, the hospital said.

Caleb was on a ventilator and has suffered seizures while in the pediatric intensive care unit, though his condition has been stable in recent weeks, his family said. After more than 50 days at the children’s hospital, Caleb was transferred this week to a rehabilitation hospital in Chicago for the next phase of his treatment.

His mother, Jesse Ziegelbauer, said they sought out Shirley Ryan AbilityLab because Caleb needs a disorders of consciousness program.

“He is made of pure grit and determination, and it is exactly that which we are banking on to wake him up,” Jesse Ziegelbauer said during a press briefing Wednesday before they left on an air ambulance. “I can’t wait for him to share his story. It is his and only his to share.”

His mother described Caleb, the eldest of four siblings, as an “amazing big brother” who loves baseball and science and wants to be an epidemiologist when he grows up.

“Caleb is brave. Caleb is strong. Caleb is a fighter. Caleb is young. Caleb is healthy. Caleb has a brain capable of healing,” she said.

As he continues to fight, his family say they remain hopeful.

“Every finger twitch we see makes us excited for what’s to come,” Jesse Ziegelbauer said.

Infections with Naegleria fowleri are rare but often fatal. Out of 154 known cases of primary amebic meningoencephalitis reported in the U.S. from 1962 to 2021, only four people have survived, according to the CDC.

This summer, a Missouri resident with a confirmed Naegleria fowleri case died, while a child in Nebraska died from a suspected case, health officials in their respective states said.

Infections mainly occur during the summer months in recreational water, according to the CDC. People can become infected by Naegleria fowleri when water containing the amoeba enters the body through their nose.

Symptoms of primary amebic meningoencephalitis include severe headache, fever, nausea, vomiting, stiff neck and seizures.

People can try to reduce their risk of becoming infected by Naegleria fowleri by limiting the amount of water that goes up their nose while in bodies of warm freshwater and by avoiding recreation in warm freshwater during periods of high water temperature.

Caleb started complaining of a headache days after playing in the water at a local beach in Port Charlotte on July 1, his family said. Though his tests were inconclusive for the disease caused by Naegleria fowleri, his doctors at Golisano Children’s Hospital believe that to be the cause of his illness, the hospital said. It is also common for Naegleria fowleri not to be initially detected in patients with primary amebic meningoencephalitis, according to the CDC.

“Due to Caleb’s symptoms, his reported recent exposure to brackish water, and his clinical course, infectious disease physicians at Golisano Children’s Hospital believe he could still have PAM caused by Naegleria fowleri and thus recommended to continue treating him for this infection,” Golisano Children’s Hospital said in a statement to reporters in late July.

Caleb’s family has been speaking out since they first learned of his likely diagnosis in hopes of alerting people on how to protect themselves.

Tampa-based Jet ICU was among those who heard about Caleb and offered to fly him and his family to Chicago at no cost.

“We heard about the story. We had to step in,” Jet ICU flight paramedic Jared Wayt told reporters Wednesday. “He’s already beat the odds. So hopefully we can help further his care and his recovery.”

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(NEW YORK) — Two parents who have turned tragedy into a teachable moment are educating others on the dangers of heatstroke.

Martin McNair and Tonya Wilson lost their 19-year-old son, Jordan McNair, in 2018 after the University of Maryland football player suffered a heatstroke following a strenuous football workout. Now, the foundation named for their son is helping others avoid the same fate.

Heatstroke occurs when the body overheats, with internal temperature rising to 104 degrees and is most likely to happen during the summer months, according to the Mayo Clinic. Older adults, people who are overweight as well as people who experience overexertion from exercise are most likely to suffer heatstroke.

“Jordan was very healthy, as far as for his weight and height, he was healthy…we were totally oblivious to what a heat-related injury was. We didn’t know what was going on,” Jordan McNair’s father, Martin McNair, told ABC News.

After Jordan’s death, his parents launched the Jordan McNair Foundation to raise awareness about heatstroke and teach parents what to look for.

“I think for us also, especially for me, my grief went into the work that we’ve done and we’re still amazed that, you know, the accomplishments and the impact that we’ve made up until this point,” McNair told ABC News.

The foundation was established in June 2018, days after Jordan died, and, since then, has started working with student athletes of all ages. The foundation’s work recently expanded to the collegiate level, partnering with Morgan University in Maryland.

“We talk to schools, literally all over the nation, but our main focus is parent education, and that’s really the main thing. Advocacy and the seeds of advocacy need to be planted at a very, very early age, so our goal is to educate parents all over the nation, along with student athletes and the more educated a parent is, the more educated the student athlete is and the more educated coaches are, because parents are asking the right questions at this point,” McNair said.

Questions they wish they knew to ask in 2018.

“I wouldn’t wish this type of pain on nobody, and even though it’s been four years, it’s still felt like yesterday,” McNair said.

“I didn’t prepare him for what I didn’t know. Even though I try not to beat myself up about it, but I constantly did because it was like, ‘I could have prepared him more.’ I taught him how to be a leader, you know? How to defend himself. How to do this, how to do that; not to use drugs or substances and things like that. But at the end of the day, I never really taught him to, If you feel uncomfortable doing something, don’t do it,” McNair told ABC News.

While McNair died in 2018, heatstroke is still an issue for athletes at all levels and even tragically claimed the life of former Dallas Cowboys running back Marion Barber III in June. In July, police in the Dallas suburb of Frisco, where Barber lived, said in a statement that Barber died of heatstroke and that his death was ruled an accident.

Heat illness often advances quickly in both football players and runners, according to the Gatorade Sports Science Institute. Since 1995, on average three athletes a year have died of heatstroke.

With record-high temperatures across the country, everyone — even non-athletes — is at an increased risk. However, with the record-high temperatures and outdoor practices for fall sports, heatstroke has an increased risk in athletes but is often confused with heath exhaustion, McNair said.

“When you’re looking at heatstroke, the big difference is in the central nervous dysfunction. So what does that mean in layman’s terms? Basically, when people start showing altered mental status, they could be ranting hysterically, which is not their normal selves. That’s a sign of heatstroke. And all of the signs look different. But again, it’s not the normal behavior of the student athlete or the person having a heatstroke. That’s what the sign, that’s what those are telltale signs like, hey, this person, this person is usually a quiet person and now they are going on a rant,” McNair said.

Irrational behavior is one of the symptoms of heatstroke, according to the Mayo Clinic. Other symptoms could include high fever, dry, hot skin, shallow breathing, seizures and weak pulse.

According to the Mayo Clinic, it’s best to wear loose fitting clothing, drink lots of liquids to stay hydrated and to do strenuous activity during cooler parts of the day to prevent heatstroke.

McNair and Wilson hope to prevent other parents from suffering the same fate as them, and plan to have their foundation expand across the country.

“He was a gentleman. Everybody loved Jordan. And all he had to do was smile and every, any place he went he would just light up a room…He was the jokester. He just played a bunch of jokes and so on. Outside of the home, he was different, but inside the home he was a lovable guy, and some days we’d just be in the house, and be eating more than talking but just a gentle giant. That’s exactly what he was, a gentle giant, and he’s missed tremendously,” Tonya Wilson, Jordan’s mother, told ABC News.

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